Core Outcome Measures in Effectiveness Trials

Standardised Outcomes in Nephrology - Glomerulonephritis (SONG-GN): determining a core set of outcomes for glomerulonephritis

General Information

Summary:
SONG-GN will provide a consensus-based set of core outcomes for glomerulonephritis trials that aligns with the shared priorities of patients, caregivers, clinicians, researchers and policy makers. SONG-GN will improve the validity, transparency, usability and contribution of research relevant to patients with glomerulonephritis. It aims to ensure that outcomes of relevance to all stakeholders are consistently reported across trials which will minimise reporting bias and increase comparability between interventions. Ultimately, patients and clinicians will be able to make better informed decisions about treatment, and researchers and policy makers will be able maximise the value of research and healthcare to the public.

Contributors:
Dr Simon Carter (The Children's Hospital at Westmead, The University of Sydney)
Associate Professor Allison Tong (The University of Sydney)

Further Study Information

Current Stage:
Ongoing
Date:
March 2018 - December 2020
Funding source(s):
National Health and Medical Research Council (NHMRC) Better Evidence And Translation in Chronic Kidney Disease (BEAT-CKD)

Health Area

Disease Category
Kidney disease

Disease Name
Glomerulonephritis

Target Population

Age Range
18 - 90

Sex
Either


Nature / type of Intervention
Any

Method(s)

Consensus meeting
Delphi process
Focus group(s)
Interview
Nominal group technique (NGT)
Semi structured discussion
Systematic review

Five phase design: systematic review, focus groups with nominal group technique, in-depth interviews, international Delphi survey and international consensus workshop.


Stakeholders Involved

Clinical experts
Conference participants
Consumers (caregivers)
Consumers (patients)
Families
Patient/ support group representatives
Pharmaceutical industry representatives
Researchers
Service providers

Study Type

COS for clinical trials or clinical research
COS for practice

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