The aim of this study is to develop a core (minimum) set of clinically relevant, patient-centred lung cancer rehabilitation outcomes for use in clinical practice and research which are important to all stakeholders, patients and caregivers, healthcare professionals and clinician researchers.
ContributorsEdbrooke, L, Granger, CL, Francis, JJ, John, T, Kadaan, N, Halloran, E, Denehy, L and Connolly, B
Disease Category: Cancer
Disease Name: Lung cancer
Age Range: 18 - 120
Sex: Either
Nature of Intervention: Rehabilitation
- Clinical experts
- Consumers (caregivers)
- Consumers (patients)
- Policy makers
- Researchers
- COS for clinical trials or clinical research
- COS for practice
- Consensus meeting
- Delphi process
- Focus group(s)
- Interview
- Systematic review
We have conducted an overview of systematic reviews of lung cancer rehabilitation and interviewed people with lung cancer and their caregivers to generate a list of outcomes for inclusion in the 'what to measure' process. These will be grouped into domains according to the International Classification of Functioning framework. Healthcare professionals, consumers and researchers will be invited to be involved in a Delphi survey (minimum of 2 rounds), followed by an online meeting to achieve consensus. To determine 'how to measure' we will search the literature for outcome measure instruments where consensus has already been reached. Where no consensus has been reached, available instruments with demonstrated psychometric properties and feasibility will be identified and the survey and consensus meeting process, involving the 3 stakeholder groups, will be repeated.