Rehabilitation outcomes for people with lung cancer (UNITE)

The aim of this study is to develop a core (minimum) set of clinically relevant, patient-centred lung cancer rehabilitation outcomes for use in clinical practice and research which are important to all stakeholders, patients and caregivers, healthcare professionals and clinician researchers.

Contributors

Edbrooke, L, Granger, CL, Francis, JJ, John, T, Kadaan, N, Halloran, E, Denehy, L and Connolly, B

Further Study Information

Current Stage: Ongoing
Date: July 2022 - December 2023
Funding source(s): Victorian Cancer Agency


Health Area

Disease Category: Cancer

Disease Name: Lung cancer

Target Population

Age Range: 18 - 120

Sex: Either

Nature of Intervention: Rehabilitation

Stakeholders Involved

- Clinical experts
- Consumers (caregivers)
- Consumers (patients)
- Policy makers
- Researchers

Study Type

- COS for clinical trials or clinical research
- COS for practice

Method(s)

- Consensus meeting
- Delphi process
- Focus group(s)
- Interview
- Systematic review

We have conducted an overview of systematic reviews of lung cancer rehabilitation and interviewed people with lung cancer and their caregivers to generate a list of outcomes for inclusion in the 'what to measure' process. These will be grouped into domains according to the International Classification of Functioning framework. Healthcare professionals, consumers and researchers will be invited to be involved in a Delphi survey (minimum of 2 rounds), followed by an online meeting to achieve consensus. To determine 'how to measure' we will search the literature for outcome measure instruments where consensus has already been reached. Where no consensus has been reached, available instruments with demonstrated psychometric properties and feasibility will be identified and the survey and consensus meeting process, involving the 3 stakeholder groups, will be repeated.

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