Towards a roadmap for COSEB: the next steps in harmonization of outcomes for epidermolysis bullosa

No abstract

Contributors

Eva W H Korte, Anna M G Pasmooij, Maria C Bolling, Sinéad Hickey, Sagair Hussain, Dimitra Kiritsi, Jan Kottner, Cecilia A C Prinsen, Angélique Sauvestre, Gaston Sendin, Phyllis I Spuls, Núria Tarrats, Verena Wally, Tobias Welponer, Martin Laimer, Peter C van den Akker, the COSEB Consortium

Publication

Journal: British Journal of Dermatology
Volume:
Issue:
Pages: -
Year: 2024
DOI: 10.1093/bjd/ljae200

Further Study Information

Current Stage: Completed
Date:
Funding source(s): The workshop was funded by the Networking Support Scheme of the European Joint Programme on Rare Diseases and ZonMw (40-46300-98-1122).

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Method(s)

Linked Studies

• Core Outcome Set for Epidermolysis Bullosa (COSEB)
• Heterogeneity of Reported Outcomes in Epidermolysis Bullosa Clinical Research: A Scoping Review as a First Step Towards Outcome Harmonisation
• Epidermolysis bullosa: time to come together for better outcomes
• Harmonization of outcomes in epidermolysis bullosa: report of the Core Outcome Sets for Epidermolysis Bullosa (COSEB) kick-off meeting

Related Links

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