This study aims to develop a Core Outcome Set (COS) for peer-to-peer support interventions for patients and parents of patients across healthcare settings. Using a systematic, multi-stakeholder approach involving patients, caregivers, healthcare professionals, and researchers, we will identify and prioritize outcomes considered most relevant. The resulting COS will support standardized outcome reporting and facilitate evaluation, comparison, and implementation of peer support interventions in clinical practice and research.
Contributors1. D. van der Heijden (MD, Researcher / Project Lead) - St. Antonius hospital
2. M. Alsem (MD PhD, Wilhelmina Kinderziekenhuis)
3 E. Postma (MD PhD, St. Antonius Ziekenhuis)
4 E. Verreck (MD Diakonessenhuis / Erasmus MC)
5. M. Verkooijen (MD PhD) Radboudumc
6 F. Tijssens (MD)
7. J. Ruiterkamp (MD PhD,Wilhelmina Kinderziekenhuis)
8. M. Ketelaar (PhD, UMC Utrecht)
9. J. Zinkstok (MD PhD, RadboudMC)
10.P. Kies (MD PhD, LUMC)
Disease Category: Other
Disease Name: N/A
Age Range: 18 - 100
Sex: Either
Nature of Intervention: Other
- Clinical experts
- Families
- Patient/ support group representatives
- COS for clinical trials or clinical research
- Consensus meeting
- Delphi process
- Systematic review
This COS will be developed in three phases. First, a systematic literature search across PubMed, Embase, CINAHL, and PsycINFO will identify all outcomes reported in peer-to-peer support research. Second, a two-round online Delphi survey will be conducted among three stakeholder groups — patients and caregivers, healthcare professionals, and researchers — to rate the importance of identified outcomes on a 9-point scale. Consensus is defined as =70% of participants rating an outcome as critically important (score 7–9). Third, a multistakeholder consensus meeting will finalize the COS based on Delphi results.