Young, B. and Bagley, H. (2016) "Including patients in core outcome set development: issues to consider based on three workshops with around 100 international delegates." Research Involvement and Engagement, 2:25.
Sherratt F. et al (2020). Ensuring young voices are heard in core outcome set development: international workshops with 70 children and young people. Research Involvement and Engagement, 6:19
This recorded webinar explains: what core outcome sets are; why they are important; how patients are getting involved in their development and the role of the COMET Initiative.
This recorded presentation from the MOMENT study explains the involvement and participation of parents, young people and a patient organisation in a core outcome set study.
Webinar 1 - UK patient organisations - This is a recording of a webinar with UK patient organisations (July 2019). It describes core outcome set development and uptake and includes contributions from patients and patient organisations. Click here to watch
Webinar 2 – International PPI Network webinar - This is a recording of a webinar hosted by the International PPI Network in February 2020. It describes core outcome set development and uptake and includes contributions from patients and patient organisations. Click here to watch